Will Weekend

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This weekend Joe’s cousin Luke married his longtime girlfriend Miranda at the Enchanted Barn. Obviously I wanted to be there, but as I wrote last – I started a new job two weeks ago and spent the majority of last week traveling. So when the weekend rolled around the last thing I wanted to do was to get back in a car for another 10+ hours. Joe & Ella decided that they would make the trip alone and Will & I would stay behind. I was sad to miss the event, but it also offered me the chance to spend some rare one-on-one time with Will.

He’ll turn 2 in a month and I’m pretty sure rare doesn’t accurately describe our time, since it’s probably the first time he and I have ever been able to do something just the two of us. We’re always together but it’s usually with Ella and he never gets 100% of my attention.

We had such a great time! We spent the morning at the pool with our friends Theresa & Bex. We thought we were crazy to go since it was pretty cloudy all morning long but as soon as we arrived at the pool, the clouds parted and the day was packed with sunshine. I later learned that we should likely thank Ella for our good fortune, as she asked Mother Nature for some sunshine at that exact same time.

We played with squirt guns, practiced counting while jumping into the pool and ate our weight in snacks from concessions. After a long nap, we then headed to our friends Emmy & Seth’s for dinner and drinks. The sangria was almost as good as the company and Will loved playing with their visiting golden retriever, Barney. We came home late and snuggled until we both fell asleep!

When we decided we wanted a second child, I told myself I would never let Ella feel like she was being replaced by a new, younger model. I have been adamant about ensuring she and I get our “girl time”  but I have neglected to make sure Will gets the same treatment. After our enjoyable weekend, I have decided that from now on I will make sure to set aside some one-on-one time with Will too.
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P.S. Ella & Joe had a great time too!

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Oh Hey, 2014!

I have no idea how it happened, but a new year is upon us. That’s right, goodbye 2013 and hello 2014. Not only is it a new year, but we’re already more than halfway through January!

I haven’t wrote in a while, for a lot of reasons really. A lot of it has been due to writer’s block, some of it has been a lack of time, but it’s definitely not because I have nothing to say (cue the sarcastic comments). I could write a 2013 review or a positive, goal-filled outlook for 2014. I could share the story of Ella opening her Christmas gifts early or her amazing opportunity to be on television for Cleft Awareness. I could write about the fact that Will is no longer a baby and has an insane ability to repeat everything we say – I’m telling you, the kid’s a parrot! Let’s not forget our annual Packer outing, New Years Eve festivities and of course there are always a lot of home improvement projects happening.

For the sake of keeping it interesting, I’m going to talk about the most important things – our kids. We’ll start with Will first. For some reason from the time he was born, Will was nicknamed by everyone as “Baby Will.” Although the nickname has held, sadly he is no longer a baby. Almost 18 months already, he is doing new things daily. As I mentioned above, he talks all the time – it’s crazy. His vocabulary probably consists of 40 words and while it’s not always clear, he really has no limits. He says the usual things like, momma, dadda, ball, puppy, no-no, etc. He also says things less typical like, football, touchdown, cheese, adios, etc. The more impressive thing is that he says things in context – “thank you” when he’s given something he’s asked for, or “get down” as he’s climbing on all the furniture in the house.

1512597_10100634258613046_1604147836_nHis actions are no longer by chance, but definitely intentional. He’s a lot like Ella, but even more devious. He knows the difference from right and wrong, but that doesn’t mean he makes the right choice. I might be biased, but he’s extremely talented. It’s made me think a lot about gender differences, but he somehow has this natural ability to pick up a ball and accurately whip it at your head. He is still a picky little eater and definitely needs to work on his short temper!

Now onto Ella. I already spoiled the end of the story, but it’s still a worthy of documenting (to share with her when she has kids of her own someday)! We always set up our tree in early December and place the wrapped presents underneath as they are purchased. We’ve never had a problem in the past and it shouldn’t be all that tempting since we don’t even wait until Christmas to open (due to traveling to our families). This year should have been even easier since I didn’t wrap and place the presents until later than normal. Almost everyday after daycare she would ask to open, “just one” gift from the under the tree. Each time she got the same answer, “absolutely not” or “don’t even think about it!”

Regardless of all of those things, the temptation was far too much for her and she caved. On December 14th, we woke to find that not only had she had opened EVERY.SINGLE.GIFT from under the tree, she also found the stocking stuffers I had hidden in our spare bedroom. The scene was shocking and surreal! I was honestly surprised because behavior-wise, she was on a good run, she had been a really good girl. Just a few days prior during our bedtime conversations she said, “it’s ok if Santa can’t bring me what I asked for, maybe he’ll just bring me something small. I just cannot believe I’m on the nice list!”

Thank goodness she can read, that at least prevented her from unwrapping all of Will’s gift too. Her actions required a punishment that would hopefully set the tone for years to come. I thought about re-wrapping the gifts, but she was excited to help with that task and I didn’t want to do it again. We ended up settling on her gifts sitting under the tree, unwrapped to see everyday, but she wasn’t allowed to play with them. I also took her to Build-a-Bear to make an animal that we then donated to Toys for Tots. She did a pretty good job with both of those punishments, but the hardest part was when Will opened his gifts. She had to sit patiently and not help or touch a thing the entire time he opened. It took him about 30 minutes and drove her (and us) a little insane! The final punishment was in her stocking, which we opened after we returned home from the holiday travel. Will’s was full of gifts from Santa, he even had a gift under the tree. Ella’s stocking was empty – except for a note in the shape of a heart. It read, “Dear Ella, try harder next year and remember, don’t open your gifts until Christmas! Love, Santa.” She was sad, but I think the point was made. If she opens her gifts ahead of time again, she’s moving in with grandma & grandpa.

Now onto better things from Ella. Our friend Emmy Fink presented us with an amazing opportunity to share Ella’s story of Cleft Awareness on the CW Network here in Madison. When I first asked Ella if she was interested she was a bit hesitant, but then quickly turned into a diva – “I don’t want you to go on t.v. with me, I want to go myself – just like my last surgery!” I had to explain that it was important for a parent to tell their story too, so she said, “okay mom, just the girls will go this time. The next time I’m on t.v. I’ll pick dad!” That kid.

When people started to hear about it, I think they expected her performance to be loud and full of personality, just like her. In reality she was a little nervous and pretty reserved, but I couldn’t be prouder of her and the outcome! Hopefully as she gets older she realize what an opportunity it was.

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Surgery Sucks

Sorry for the pessimistic title, but it  really does. Surgery is the worst! While we successfully made it through Will’s surgery last week, it hasn’t changed my outlook on surgery as a whole.

Ella’s surgery is Thursday morning. Due to her cleft lip & palate, she’ll have lip & nose revision, palate fistula repair, dental work and ear tubes. Her surgeon estimates she’ll be under anesthesia for around 5 hours and recovery could take up to 2 weeks! We’ll get the call tomorrow night to inform us of what time we need to report to the hospital and when she needs to stop eating/drinking. It’s been such a long time since she’s undergone a major surgery, that I’m out of practice.

The bigger issue is that she’s now big enough to be aware of what’s going on, which means she asks a ton of questions. We are extremely open and honest with her so when she asks things like, “will they cut my face?” the answers become very challenging. I’m happy she’s talking about it and I think Will’s surgery has helped her to be better prepared, but it breaks my heart to know she’s so little and has to face surgeries like this for a large portion of her life.

When we went through her lip repair at 4 months we worried, but at that time she hadn’t had the opportunity to fully showcase her enormous personality and we were lucky that she bounced back quickly. By the time she was 10 months and undergoing her palate repair, we really worried that the surgery might change her personality. We worried that it might change who she was, it might dim her light. For a week after the surgery, she didn’t smile, she didn’t giggle and she was a defeated little girl.

I do not want to go through that ever again. That was the worst feeling in the world. Luckily her bright, shining star returned, but the thought of losing a piece of the child we love so much is terrifying. The risk of surgery is a very dangerous thing, but as a mother, watching your little one in pain during recovery is the most helpless feeling. If only we could trade places!
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Time Stand Still

Yesterday my baby turned 1. While it’s an amazing thing to watch your children grow – it was a tough day for me. I wish I could find a way to make time stand still. I love this age.

Will learns something new every day. He smiles, laughs and squeals all the time – just to get a bit of attention. He’s on the move, crawling everywhere – even up the steps (all the time)!
He still eats like a beast, but now it includes solids too! He loves pretty much everything, especially blueberries. He thinks it’s hilarious to throw his food on the floor whenever he feels like it. The dogs don’t seem to mind, but I’m not a huge fan of the ants he’s attracting as well.

I’m currently his favorite person on Earth. I wish that would last forever. He loves to play with me, tackle me, snuggle with me – really just anything that involves me. I’m sure I’ll want to pay great amounts of money for that attention in 12 years.

While his birthday was a bit sad, we had a great time at the zoo. The weather was beautiful and the animals were at their finest. We were able to see the chimps playing up close and personal, the sea lions preparing to be fed and the tiger bathing himself. While checking out the giraffes the zookeeper randomly chose us to go back to feed them. It was the coolest experience and both kiddo’s loved it. I knew they had long black tongues, but I did not know they were that soft. I was expecting something much more coarse!

After we finished the zoo, we returned home for some cake. I thought Will loved blueberries, but it stands no chance in comparison to cake. He ate every last bite and was so full of sugar that he was up til 10 p.m.
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Will Update

Will’s surgery was a success!

We were dreading the morning of because he wasn’t able to eat after midnight, but I woke him to feed at 11:30 p.m. and he went right back to sleep. He slept all the way through the night and the morning went surprisingly smooth. We took Ella with us to the hospital and even she cooperated! We arrived at the Children’s Hospital (Tuesday, July 23) at 6:15 a.m. We were able to play with all the new toys and before we knew it, it was 7:45 a.m. and they were coming to take him in.

I chose to not go back to put him under. I felt it would be too hard on both of us; him wanting me to hold him and me not being able to see him cry. As the anesthesiologist walked down the hall, his big blue eyes looked back to see Ella & I peeking around the corner. It was heartbreaking. I hate those double doors! As they opened up, I was fighting back tears so that Ella didn’t see me cry.

We used this experience as an opportunity to prep her for her next surgery too. While I’m not happy that Will had to go through surgery, it does help for her to see that she’s not the only one to endure it.

We were told the surgery would take 2 + hours and that there were a few different scenarios that could play out. As I mentioned in my previous post – we were prepped for 3 different outcomes. Around 9:25 a.m. the anesthesiologist came to let us know that the surgery was over, ensured us that he did great and the surgeon would be in to debrief us.

The surgeon then came out and informed us that much to his surprise, the testicle was there. It was very high and half the size of the other, but it was still there. They were able to remove it and place it in it’s rightful place. He indicated that it could move up & out again and if that happened we’d remove it entirely. He also stated that there was a hernia associated with the issue as well, and they removed it. We now wait to see if it grows and functions as he grows older and goes through puberty.

We were told that someone from recovery would come and get us once he woke up. We waited for about a half hour and no one came for us. Finally a nurse came to say he was still sleeping, but she could take us back. When we got back there his nurse indicated she was worried about his airway because he was pretty full of mucus. We tried over and over again to get him to wake up and cough it out and he just wouldn’t do it.
As time went on you could see the concern grow in the nurses faces. We had been in recovery for over an hour and could not get him to wake up, no matter how much we tickled his feet, pinched his cheeks or rubbed his head. The anesthesiologist was coming back and forth and decided it was time to give him some anesthesia reversal meds to try to get him out of it. After three separate doses, nothing was working. I was getting very worried because it was almost two hours and we could not get him to respond to us and he couldn’t go without the oxygen mask without his levels dropping.

We had two options left – 1)stick a tube down his nose into his throat to get him to cough up the congestion or 2) get a cold wet washcloth and rub it all over him. Obviously, we opted for the latter and after two long hours we were finally able to get him to open his eyes. After he was able to breath without oxygen for 15 minutes, we were released to our room.

Will remained pretty sleepy and not very hungry for the majority of the time, but was able to eat right before it was time for us to pack up and go home. They estimated his recovery time to take one full week and that he could move around based on his comfort level.

We assumed he would be immobile for a few days and when we got home he was a bit whiney and definitely slow moving, but shortly there after returned to his old, crazy self. He began to eat like normal (a lot), nap like normal (2+hours) and move like normal (all over the place).
Even though his bandages are bloody & he’s bruised and swollen, he acts like it doesn’t bother him. He even slept through the night!

I continue to be amazed by the strength of my children. They are by far the toughest, most amazing little humans I know. They’re also sweet. Don’t believe me, check out the picture Ella made for Will the day of his surgery!
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